MarbleRoad is a proud partner of the CureTheProcess Campaign of the Kakkis EveryLife Foundation. The campaign strives to inspire science-driven public policy to increase the predictability of the regulatory process for rare disease treatments. We support their goal to give even the most rare diseases access to the accelerated approval process and fulfill more completely the original intentions of the Orphan Drug Act.
The Global Genes Project is a grassroots effort with a simple goal: Increase awareness for the prevalence of rare diseases and help those affected by them. While each disease may be rare when considered by itself, together they negatively impact the lives of millions of children and adults.
You can think of us as a tree of creativity, with branches joining together indie musicians, charitable organizations, and t-shirts with a fashionable punch. We’re a non-profit Montreal based organization dedicated to bringing our customers the finest of quality, originality, and philanthropy. We seek out only the coolest of cool artists, collaborate with them to design awesomely awesome tee-shirts, and give all the prettiest of pretty profits to charities of the artists’ choice.
EP Mission Statement
About EP Global Communications, Inc.
EP uses a multi-media approach to disseminate information through the following methods: its monthly print publication, EP (Exceptional Parent) magazine; its Website (www.eparent.com); clinical custom communications projects; the EP Bookstore(www.epbookstore.com) which offers books, DVDs, and CDs on a wide range of disability related subjects; and online, interactive CME accredited seminars and teleconferences on a wide range of special needs topics (www.epliveonline.com) .
MarbleRoad and/or its staff are members of the National Organization for Rare Disorders (NORD), the National Association of Community Health Centers (NACHC), and the Society for the Arts in Healthcare.